Leeds Rhinos legend Rob Burrow MBE's campaign for Motor Neurone Disease (MND) funding has been rejected by the UK government.
Geoff Burrow, father of the former Rhinos star, took to social media to share his anger at the lack of funding for MND in the government budget announcement.
A coalition of MND organisations, researchers and campaigners, including Geoff Burrow, submitted a funding bid to the government in September to request official funding into the life-changing condition.
Rob and Geoff Burrow and Lindsay Hoyle MP in September, before delivering a patient letter requesting increased MND research funding to Downing Street. / Image: Jane Halhead
MND is a degenerative disease that has left Leeds Rhinos legend of 16 years, Rob Burrow, paralysed and forced to communicate with his family through an eye-driven device.
The condition affects nerves in the brain and spinal cord and has life-changing consequences for anyone diagnosed with the condition.
The proposal for additional funding had been backed by business secretary Kwasi Kwawrteng but the budget announcement on Wednesday saw the pledge omitted.
There are currently over 5,000 people in the UK living with the "brutal disease" according to the MDA Association.
Chief Executive, Sally Light commented on the lack of funding as "disappointing".
"The government hasn't listened to our plea to invest £50 million in targeted MND research. Our researchers are on the cusp of a breakthrough in discovering treatments for MND but they need a meaningful injection of funding".
Father of Rob Burrow, Geoff Burrow desperately issued a plea on social media asking the government to reconsider.
Rob Burrow has diagnosed with MND in December 2019 and is cared for full-time by his wife Lyndsey.
The ex-Rhinos star spoke out earlier this year about his condition, saying that "it's beautiful being cared for by the only girl you've ever loved".
The Burrow family have been supported online, with many fans and strangers to Rob's celebrity status alike commenting kind words in response to the tweet.
"We are outraged Geoff! Time for people to stand up and force action. We love you @Rob7Burrow".
"Same old same old words are cheap. They are happy to jump on a good cause when it gets them publicity. The wee man has did more than his share to raise awareness we must all push on and keep it in the headlines. Well done for talking out Mr B".
There is a fundraising event from the Motor Neurone Disease Association taking place on Saturday 6 November where a folk concert performance is hoping to raise funds for research.
There is also the Doncaster 10K and Clowe Half Marathon events in November and plenty of other opportunities to get involved in campaigning to fund the condition.
Andy Burnham has said that he wants to scrap the 'unfair' ban on fans getting to drink alcohol in football stands.
It's a ban that's been in place in the top five tiers of men's football since 1985, when fears over violence and hooliganism were at their height, but now the Prime Minister has raised the question of whether drinking in football stands - or 'drinking in sight / view of the pitch', as it's known formally - is actually unjust, due to the fact that same rules don't apply to fans of other sports.
"I don't think it's fair for football fans to be singled out in that way," Andy Burnham has declared this week, grabbing headlines in the process.
He continued: "I think that legislation dates to an era where football was very different, and I do believe there is a case to remove that discrimination.
"I'm not going to back away from what's been a long-held view of mine. I don't see how it can be fair that some supporters of one sport can be treated differently."
The Prime Minister's comments have been met with mixed response.
Andy Burnham wants to scrap the 'unfair' ban on drinking alcohol in football stands / Credit: James Kirkup | Julia Nastogadka (via Unsplash)
The Football Supporters’ Association (FSA), for example, has very much welcomed the idea, saying that it 'totally agrees' the legislation is 'outdated' and 'deserves to be reviewed'.
Tom Greatrex, chair of the FSA, said in a statement: "The FSA has always argued that it’s unfair to criminalise football fans for having a pint while watching the match - especially since you can sit in the same seat drinking alcohol whilst watching an Oasis gig or rugby league."
However, on the flip side, the UK Football Policing Unit said it would be 'incredibly rash' to change the rules without proper consultation.
"Other sports simply don't see the violence and criminal behaviour from their supporters that football does, albeit a minority, with alcohol often playing a significant part in violent and disorderly behaviour," it said in a statement on the matter.
The Prime Minister did state in his initial proposition though that 'there are different ways it could be done', hinting that it could be done 'on a trial basis' perhaps.
The English Football League (EFL) added that it would be 'receptive to discussions around reviewing current legislation and permitting alcoholic drinks within view of the pitch'.
No formal details on a review have been confirmed as of yet, so fans are encouraged to stay tuned for updates in due course.
Featured Image - Pexels
Sport
Kevin Sinfield will return to Leeds for his final 7 in 7 challenge in honour of Rob Burrow
Clementine Hall
Leeds legend Kevin Sinfield is set to take on his seventh and final 7 in 7 challenge this month.
The former Leeds Rhinos captain will begin 7 in 7: The Grand Finale next Sunday 27 September.
Wondering what on earth that is? Allow us to fill you in.
Sinfield will be running an ultra-marathon every day for seven days, and this time it's across the north of England including a special stop off right here in Leeds.
Not only that, but the challenge will bring Sinfield back to some of the places that have played a huge part in his rugby league career.
The route will visit all 12 English Betfred Super League grounds, starting at Hull KR before travelling through Yorkshire and eventually crossing the Pennines towards Manchester where Sinfield is from.
Here in Leeds, we can expect Sinfield to arrive at Headingley Stadium on Wednesday 30 September at 11:14am, before leaving towards Pudsey Civic Hall at 11:40am.
The challenge will then finish at Old Trafford on Saturday 3 October, where Sinfield will arrive ahead of the Super League Grand Final.
Since the first annual challenge back in 2020, Kevin Sinfield and his team have raised over £11 million for the MND community with six charities set to benefit once again from this years fundraising.
It's an amazing challenge for an amazing cause, and you can donate and find out more about the challenge here.
Good luck Kevin and the team, we know you'll smash it.
Sophie Smith -
29th October 2021 
